Comments for The Myalgic Encephalomyelitis / Fibromyalgia Society of Alberta http://www.mefmalberta.org In comparison with other chronic illnesses such as Multiple Sclerosis, end-stage renal disease and heart disease, patients with ME/CFS show markedly higher levels of disability. Fri, 12 Mar 2010 13:42:59 +0000 http://wordpress.org/?v=2.5.1 Comment on My Fibromyalgia Story by CPM http://www.mefmalberta.org/2008/05/my-fibromyalgia-story/#comment-180 CPM Thu, 18 Feb 2010 14:08:43 +0000 http://www.mefmalberta.org/?p=25#comment-180 I have recently been told by my doctor that she thinks this very well be what I have... Oh lucky me! I'll be 46 in June 2010, I'm at the point I can't pick up my 3 year old grand daughter due to the fact that my hands feel like they could fall off at the wrist. It hurts to get up from any position if I've been in that position for any amount of time, 4 or 5 minutes and up. On top of this I also have been told that I have rheumatoid arthritis and osteoporosis (1 year and a few months). When I was young, there was only our mother in the house because our father was no father at all, he left when I was 2 years old. There was 11 of us plus our mother in the house and my mother had to make due with what we had... including not as much milk in the house as there certainly should have been for this many mouths too feed. My mother who turned 81 in the fall 2009, [just finished Kemo and Radiation a month (Jan. 2010), got the good news that they believe they got it all and that she has a clean bill of health at the moment], did the best she could with what she had to work with. My doctor says that's where most of my problems started, but I could have done better for myself if I had drank more milk as I got older, I hate the taste of the stuff... taste like a cow walked threw my mouth. I have recently started Lyrica, the smallest amount you can get - 2 x 75 mg day, but it is not doing much,(at first it seemed to, but that effect only seemed to work for a few days) so my doctor will either take it away or prescribe a larger dosage. I also take Naproxen 20% Cream Compound, for anti-inflammatory, I can't take this in a pill form because I it upsets my stomach. I also take Amitriptyline at night to help me sleep, this does work - 2 x 25 mg. I hopefully got lucky this week, as I got a call from the Pain Clinic that I have been waiting for over 2 years, I have an appointment for Monday next week, Feb. 22, 2010. I have no idea what they can do for me... but hey why not give it a try. Another note... I also have a sister with bone problems, mostly to do with her back, she has Scoliosis, which is curving of the spine. On top of all of this, I seem to be awful forgetful. Sometimes it could be in mid sentence... I'll have to ask what is it we were just talking about? This is Not Funny any longer. I hate age. Good luck too all who get this Ball and Chain. I have recently been told by my doctor that she thinks this very well be what I have… Oh lucky me! I’ll be 46 in June 2010, I’m at the point I can’t pick up my 3 year old grand daughter due to the fact that my hands feel like they could fall off at the wrist. It hurts to get up from any position if I’ve been in that position for any amount of time, 4 or 5 minutes and up. On top of this I also have been told that I have rheumatoid arthritis and osteoporosis (1 year and a few months). When I was young, there was only our mother in the house because our father was no father at all, he left when I was 2 years old. There was 11 of us plus our mother in the house and my mother had to make due with what we had… including not as much milk in the house as there certainly should have been for this many mouths too feed. My mother who turned 81 in the fall 2009, [just finished Kemo and Radiation a month (Jan. 2010), got the good news that they believe they got it all and that she has a clean bill of health at the moment], did the best she could with what she had to work with. My doctor says that’s where most of my problems started, but I could have done better for myself if I had drank more milk as I got older, I hate the taste of the stuff… taste like a cow walked threw my mouth.

I have recently started Lyrica, the smallest amount you can get - 2 x 75 mg day, but it is not doing much,(at first it seemed to, but that effect only seemed to work for a few days) so my doctor will either take it away or prescribe a larger dosage. I also take Naproxen 20% Cream Compound, for anti-inflammatory, I can’t take this in a pill form because I it upsets my stomach. I also take Amitriptyline at night to help me sleep, this does work - 2 x 25 mg.

I hopefully got lucky this week, as I got a call from the Pain Clinic that I have been waiting for over 2 years, I have an appointment for Monday next week, Feb. 22, 2010. I have no idea what they can do for me… but hey why not give it a try.

Another note… I also have a sister with bone problems, mostly to do with her back, she has Scoliosis, which is curving of the spine.

On top of all of this, I seem to be awful forgetful. Sometimes it could be in mid sentence… I’ll have to ask what is it we were just talking about? This is Not Funny any longer. I hate age.

Good luck too all who get this Ball and Chain.

]]> Comment on Research Update and Clinical Tips from the Experts Podcast by Jackie Ford http://www.mefmalberta.org/2009/01/research-update-and-clinical-tips-from-the-experts-podcast/#comment-179 Jackie Ford Tue, 02 Feb 2010 23:46:58 +0000 http://www.mefmalberta.org/?p=50#comment-179 Ace work. You have got a brand-new devotee. Please maintain the good writings and I look forward to more of your entertaining writings. Ace work. You have got a brand-new devotee. Please maintain the good writings and I look forward to more of your entertaining writings.

]]> Comment on Varsity Natural Health Illness and Injury recovery Class Goes On line by Xtend life http://www.mefmalberta.org/2009/09/varsity-natural-health-illness-and-injury-recovery-class-goes-on-line/#comment-178 Xtend life Sun, 10 Jan 2010 17:06:43 +0000 http://www.mefmalberta.org/?p=57#comment-178 A condition that interferes with the function or structure of any tissues or organs is called a degenerative disease. Cancer, diabetes, liver disease, heart disease, Alzheimer A condition that interferes with the function or structure of any tissues or organs is called a degenerative disease. Cancer, diabetes, liver disease, heart disease, Alzheimer

]]> Comment on Trauma and CFS by nursing http://www.mefmalberta.org/2008/09/trauma-and-cfs/#comment-177 nursing Fri, 08 Jan 2010 17:30:37 +0000 http://www.mefmalberta.org/?p=34#comment-177 Hey! I admire your writing and the way you explain things. Some of the comments on here too are insightful. I appreciate you. keep it up! Hey! I admire your writing and the way you explain things. Some of the comments on here too are insightful. I appreciate you. keep it up!

]]> Comment on Personal story by Cathy H by Steven Hall http://www.mefmalberta.org/2009/05/personal-story-by-cathy-h/#comment-176 Steven Hall Fri, 18 Dec 2009 17:53:29 +0000 http://www.mefmalberta.org/2009/05/personal-story-by-cathy-h/#comment-176 A buddy recommended me to check out this site, great post, fanstatic read... keep up the cool work! A buddy recommended me to check out this site, great post, fanstatic read… keep up the cool work!

]]> Comment on Survival Tips for FM & ME by Katheryn Holloman http://www.mefmalberta.org/2008/09/survival-tips-for-fm-me/#comment-175 Katheryn Holloman Mon, 14 Dec 2009 15:07:04 +0000 http://www.mefmalberta.org/?p=38#comment-175 This, no matter how light the weight @ 20 reps you are going to start rounding or slacking in some way on your form with the DL... This, no matter how light the weight @ 20 reps you are going to start rounding or slacking in some way on your form with the DL…

]]> Comment on Managing Pain, Diet and Taking an Environmental History Podcast by Riley http://www.mefmalberta.org/2009/01/managing-pain-diet-and-taking-an-environmental-history-podcast/#comment-174 Riley Sat, 28 Nov 2009 22:52:08 +0000 http://www.mefmalberta.org/?p=47#comment-174 You wouldn't believe it but I have wasted all day digging for some info about this. Thanks for this, it was a essential read and has helped me out to no end. Have a good one,<a href="http://www.fast-diet-plans.com/diet-plan/success-with-the-subway-diet-plan/" rel="nofollow">subway diet</a> You wouldn’t believe it but I have wasted all day digging for some info about this. Thanks for this, it was a essential read and has helped me out to no end. Have a good one,subway diet

]]> Comment on My personal journey with Fibromyalgia by Tamara http://www.mefmalberta.org/2009/01/my-personal-journey-with-fibromyalgia/#comment-166 Tamara Mon, 19 Oct 2009 17:57:22 +0000 http://www.mefmalberta.org/?p=43#comment-166 Thanks you so much for sharing this story. I have fibro with chronic fatigue and depression, etc. I have terrible problems with pain and spasms in my 'ribs' but never knew what they might be. They're incredibly painful. Now at least there's something I can look up to see if it is chronic rib subluxations you mentioned. I'm feeling weary of being 'tossed' on a sea with doctors, insurance company, etc. and am now trying to take a more active role in understanding my illness..es... and searching for the best care I can get. Facing an appeal to fight for the disability income I have lived on for the past 6 years and am just about scared to death. Already I am finding sites and people who, with just a little compassion and shared information, have helped so much to make me feel just a little less 'crazy.' Again, thank you so much for sharing your story. ... Tamara Thanks you so much for sharing this story. I have fibro with chronic fatigue and depression, etc. I have terrible problems with pain and spasms in my ‘ribs’ but never knew what they might be. They’re incredibly painful. Now at least there’s something I can look up to see if it is chronic rib subluxations you mentioned. I’m feeling weary of being ‘tossed’ on a sea with doctors, insurance company, etc. and am now trying to take a more active role in understanding my illness..es… and searching for the best care I can get. Facing an appeal to fight for the disability income I have lived on for the past 6 years and am just about scared to death. Already I am finding sites and people who, with just a little compassion and shared information, have helped so much to make me feel just a little less ‘crazy.’ Again, thank you so much for sharing your story. … Tamara

]]> Comment on Survival Tips for FM & ME by Shelda http://www.mefmalberta.org/2008/09/survival-tips-for-fm-me/#comment-92 Shelda Wed, 12 Aug 2009 01:35:09 +0000 http://www.mefmalberta.org/?p=38#comment-92 Hi Charlaine, I was diagnosed in February and it feels like my life has come to a complete halt. I am interested in what information you can share with me. Hi Charlaine, I was diagnosed in February and it feels like my life has come to a complete halt. I am interested in what information you can share with me.

]]> Comment on Meditation and Other Self Management Approaches to Chronic Illness - Podcast by Robin McKay http://www.mefmalberta.org/2009/01/meditation-and-other-self-management-approaches-to-chronic-illness-podcast/#comment-91 Robin McKay Tue, 11 Aug 2009 22:10:31 +0000 http://www.mefmalberta.org/?p=48#comment-91 I tried viewing the podcast, and couldn't download it. I offer a complementary therapy - Jin Shin Jyutsu - for FM, CFS and other ailments..and also teach self help in this, plus meditation. I would be interested in seeing the podcase. I tried viewing the podcast, and couldn’t download it. I offer a complementary therapy - Jin Shin Jyutsu - for FM, CFS and other ailments..and also teach self help in this, plus meditation.
I would be interested in seeing the podcase.

]]>