Valuable Web Resources and Links
Sat, May 10, 2008
1. National ME/FM Action Network is a Canadian Registered, non-profit organization dedicated to advancing the recognition & understanding of ME/CFS & FMS through education, advocacy, support & research.
www.mefmaction.net
2. FM-CFS Canada operates as a volunteer organization, focused on patient, public & physician awareness.
www.fm-cfs.ca
3. Fibromyalgia & Fatigue Centers Inc.
“The Fibromyalgia & Fatigue Centers (FFC) are dedicated to treating patients suffering from conditions know as Fibromyalgia & Chronic fatigue Syndrome. It is through a holistic, integrated & comprehensive approach to the treatment of underlying physiological factors that differentiates our approach and ultimate patient success. It is our goal to develop individualized & sustaining regimes that lead to a significant change for positive patient outcomes.”
www.fibroandfatigue.com
4. National Fibromyalgia association, is a non-profit organization that helps develop & execute programs dedicated to improving the quality of life for people with Fibromyalgia
www.fmaware.org
5. Co-Cure, this group searches all of the research, news items, and relevant information about ME/CFS and FM every day. You can get set up to receive a daily digest of all of their postings and stay up-to-date this way. It is a must have if you are into the research and political aspects of these illnesses.
www.co-cure.org
6. Cort Johnson presents good background information about the illness and also reviews recent advances in research. His depth of knowledge is impressive and he offers educated opinions on much that is happening in the research front and in the politics of these illnesses.
www.pheonix-cfs.org
7. Sarah Myhill is an MD in Wales who has a website filled with lots of information about many illnesses, but about ME/CFS in particular. The information presented here is current and both theoretical and clinical.
www.drymill.co.uk
Tags: web links, Web Resources
August 15th, 2008 at 3:20 pm
I suffered from severe CFS/ME, but have now recovered and have been living a normal life for 7 years with no symptoms. Due to the lack of information available at the time (and still not available), I did my own research and after recovering I wrote a book so that other patients would have the information that I wish I had when I was ill. I have just recently put a free e-book version of my book on the website.