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Wanted: Participants for Research on Fibromyalgia

Thu, Aug 5, 2010

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Research Title: Understanding “Contested” Chronic Illness: A Case Study of the In/Visibility of Fibromyalgia Syndrome (FMS) in the UK and Canada Principal Researcher: Tiffany Boulton, MA Doctoral Candidate Department of Sociology and Social Policy University of Leeds Leeds, United Kingdom Email: fmsresearch.leeds@gmail.com Website: http://www.sociology.leeds.ac.uk/research/students/boulton.php I am a PhD student at the University of Leeds and I am currently recruiting participants for a research project that examines the experiences of women and men living with fibromyalgia in Canada and the UK. If you think that you might be interested in participating in this research project, please take a moment to read the following. I would like to thank you in advance for taking the time to read this information and for your interest in the research project. (more...)

NATIONAL ME/FM ACTION NETWORK JOINS FACEBOOK & TWITTER

Sun, May 16, 2010

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As May 12th, International Day of Awareness for ME and FM, approaches, we are pleased to join the Facebook and Twitter communities to help raise awareness for these illnesses. You can now find us on Facebook at: http://www.facebook.com/pages/National-MEFM-Action-Network/119761554710463 and on Twitter at: www.twitter.com/mefmaction. (more...)

INTRODUCING OUR NEW “Partners in Wellness” PROGRAM, Calgary

Mon, Apr 19, 2010

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As the Executive Director for the ME/FM Society of Alberta and on behalf of our board we are proud to introduce our new “Partners in Wellness” program. As someone who suffers from ME/CFS and as most of our board members either suffers with ME or FM the question always comes up, “How do I get back a certain amount of quality of living in order to be able to do some of the things that I once loved?” While studies are underway way or new discoveries are being made, we’re all left with the big question “What do I do in the meantime?” Everyone’s illness takes on different forms, levels of pain and fatigue varying sometimes day to day. The level of frustration for patients can be insurmountable with the lack of knowledge or compassion from the medical community. This leaves patients feeling overwhelmed and “not credible” in the eyes of friends and family. Finally, once you have visited every specialist that the medical community has to offer and are offered little or no answers, we are left on our own. This is where we all must take an active role in managing our health. We must continue to seek medical advice but must also try to find ourselves doctors that are compassionate. Most of us at some point turn to alternative practitioners. By trying to understand the root causes such as dietary intolerances, allergies and hormonal imbalances to name a few, we can slowly start taking charge of our level of wellness. (more...)

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Personal account and information about ME/CFS, including Clinical Definitions, Viruses involved, symptoms, some treatments and functioning levels.

Video by the American Centre for Disease Control and Prevention about the condition Chronic Fatigue Syndrome/Myalgic Encephalopathy, titled “Missing My Life”.